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"Finding the right help at the right time can make life so much easier. We're here for for you" - CSCP Staff
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    Blog Posts (23)
    • The Impact of Ruth Bader Ginsburg's Life on the Cancer Community

      By Rachel Koonse, LMFT and Miranda Johnson September 21, 2020 This past Friday, September 18, 2020, Justice Ruth Bader Ginsburg died at the age of 87 due to complications from metastatic pancreatic cancer. The “Notorious RBG” – as she came to be affectionately known – was a bold revolutionary. The second woman to sit on the Supreme Court, Ginsburg was a strong advocate for gender equality. Over the course of her 27 years as a Justice, she delivered “some of the Supreme Court’s most influential majority opinions” (Blakemore, 2020). Ginsburg was also one of only 9 women in a class of 500 students studying law at Harvard University. Despite an impeccable professional and academic record, Ginsburg faced barriers towards gaining employment as a woman in a male-dominated field. By 1970, Ginsburg founded The Women’s Rights Law Reporter, the first law journal in the U.S. focusing on gender equality issues, and became the first woman to receive tenure as a professor at Columbia University Law School. She went on to create the ACLU’s Women’s Rights Project, served on the national board of the ACLU, and argued several cases of sex discrimination before the Supreme Court. Ginsburg served for 13 years on the U.S. Court of Appeals before being appointed to the Supreme Court by Bill Clinton in 1993. Throughout her career, she argued for equal citizenship status for men and women, propelled university admission rights for women, fought for rights for women with disabilities, argued against wage discrimination, and supported LGBTQ rights. Ginsburg was impacted by cancer several times throughout her life. Before Ruth Bader graduated from high school, her mother – Celia Bader – died of cancer. While studying at Harvard Law School along with her husband, Marty Ginsburg, Ruth and Marty both learned that he had been diagnosed with testicular cancer. Ruth was Marty’s caregiver as he underwent surgeries and radiation. In a 1993 interview with NPR, Marty said, “So that left Ruth with a 3-year-old child, a fairly sick husband, the law review, classes to attend and feeding me” (Totenberg, 2020). Ginsburg herself was first diagnosed with colon cancer in 1999. In 2009, she was diagnosed with pancreatic cancer. In 2018, she received the news that she had lung cancer. And in 2019, she was diagnosed with a metastatic recurrence of pancreatic cancer. As an organization that provides social and emotional support to people who are impacted by cancer, CSCP finds the toll that cancer had on Ginsburg’s life and on her family to be a sobering reminder of the ever-present need for support when facing a cancer diagnosis. In spite of the profound impact that it had on her and her family, Ginsburg did not allow her cancer experience to define the totality of her life. RBG famously said, “Justice O’Connor told me, ‘Now you do the chemotherapy on Friday because you’ll get over it during the weekend and you can be back in court on Monday.” Ruth Bader Ginsburg’s work was her life’s meaning. In a similar way, CSCP can provide hope, purpose, and meaning amidst a cancer diagnosis. In our support groups, classes, and workshops, our members can be candid about their cancer experience, while also forging ahead towards new horizons, just as RBG did. Works Cited Blakemore, Erin. “Ruth Bader Ginsburg, Supreme Court Justice Since 1993, Dies at 87,” uploaded by History.com, 18 Sept. 2020, http://www.history.com/news/ruth-bader-ginsburg-death. Kinstler, Everett Raymond. Ruth Bader Ginsburg. 1996. National Portrait Gallery, Washington, D.C. https://npg.si.edu/object/npg_NPG.97.37. Ruth Bader Ginsburg Biography- Academy of Achievement. (September 18, 2020). Retrieved September 21, 2020 from https://achievement.org/achiever/ruth-bader-ginsburg/. Totenberg, Nina. “Justice Ruth Bader Ginsburg, Champion of Gender Equality, Dies at 87,” uploaded by NPR, 18 Sept. 2020, https://www.npr.org/2020/09/18/100306972/justice-ruth-bader-ginsburg-champion-of-gender-equality-dies-at-87.

    • April 16 Was National Healthcare Decisions Day

      By Karen Morin Green, RN Now more than ever, these discussions cannot wait. I encourage everyone to have an end of life conversation with spouses, partners, loved ones, parents, siblings, mature children, and your doctor. - But I’m fighting cancer, focusing on treatment! Why talk about death now, when I feel good, and it’s going so well? As a long time oncology nurse and support group facilitator for those with metastatic disease, I understand you, your family, and your medical providers are all laser focused on treatments and living. I often had patients that complained they actually wanted to talk about death and dying, and discuss and what quality of life means to them, but not only did their families divert or defer these discussion about end of life but their doctors often also avoided the discussion. Today, I write to urge you, even plead with you to HAVE THE TALK! COVID-19, has had unprecedented impact. Now is an excellent time to discuss and plan what would happen if you got this infection. We know that those with heart disease, diabetes or COPD; suppressed immune systems from illness or cancer treatment, and any underlying significant conditions and their family members are at risk. COVID-19 is also attacking young, healthy people. It is in everyone’s best interest to have the best plan you can for all members of the family. None of us know when our time will come and the best time to make plans is when we are healthy and sound mind. We have all looked the other way but the images on television and news stories have sent many to want to reach out take control and make plans. Please: · Do not wait for your doctor to ask or bring up end of life issues. · Be your own advocate! Let your doctor know you want them to be open and honest with you about your illness and prognosis. · Identify your health care proxy and Advanced Health Care Directive by choosing the person you trust to advocate for you. You may not get a warning before you can’t speak for yourself. · Remember, Medicare pays for an end of life discussion; even via “tele-med” calls. · Make sure that your doctors, family, and your advocate know your wishes about all interventions at End of Life. Research has shown that up to three-quarters of treating physicians didn’t know their patients had an Advance Health Care Directive. · If you are elderly or have underlying disease at an advanced stage consider a new tool The National Hospice and Palliative Care Organization has published a new tool it assists with making decisions should you are a family be faced with COVID-19. It factors in age, current symptoms, other diseases and helps determine your likelihood of survival should you contract the virus. It may also get you thinking about your preferences even if you aren’t infected with the coronavirus. Be mindful of COVID-19 specific issues: · Decide whether you want to go to the hospital (with all of the potentially life saving measures) if the COVID-19 disease progresses, potentially isolated from your family; or would you rather remain at home with comfort measures and care. · Understand what it means to go on a ventilator and the potential difficulties of coming off a ventilator. · Discuss with your proxy your wishes about CPR · Check out Prepare for Your Care (https://prepareforyourcare.org/welcome) and it’s new COVID-19 update with downloadable forms and checklists as does CompassionandChoices.org, which also provides free care fact sheets and planning tools and a special COVID-19 add-on sheet (https://compassionandchoices.org/wp-content/uploads/COVID-19-Addendum.pdf). Those who have conversations with their doctors about advanced care planning enjoy increased satisfaction, confidence, control, and influence regarding their care. Patients who talked with families about specific preferences in their end of life care felt less anxiety and fear. These discussions create and sustain trust and comfort. Family members are then able to make difficult decisions with confidence and clarity knowing they have followed your wishes and are grateful and comforted. Every situation is different; make sure you have made lists of passwords and important papers. COVID-19 moves quickly. Not doing anything, not discussing these issues can instantly become an uncorrectable mistake. Don’t wait! Become your own advocate by beginning these conversations now. Frankly discuss your wishes, learn other family members’ wishes, and make sure proxies are identified. Give your doctor a copy of your completed Advance Health Directive. Make sure your doctor has the contact information for your appointed health care agent. All of us want to die peacefully, but we cannot do it alone. If you want some control during these uncertain times it’s UP TO YOU!

    • What’s Next for Healthcare Reform?

      Cancer Support Community’s services are provided under the framework of a Patient Active concept, developed by our founder, Harold Benjamin. The Patient Active model places individuals at the center of their care, encouraging them to make the best informed healthcare decisions for themselves. To that end, CSC provides a place where people can be empowered by knowledge, strengthened by action, and sustained by community. Additionally, CSC’s Research and Training Institute empirically validates the programs that we offer, and continually seeks feedback from individuals with cancer to refine and improve upon our patient-centered care. CSC advocates on a national level to promote these ideals to ensure that all individuals with cancer can access quality healthcare that includes psychosocial support. Our Cancer Policy Institute takes the following three stances: “access to care for all patients, quality as a central theme, [and] research as a critical priority.”[1] As of late, healthcare reform has been a primary focus for CSC’s Cancer Policy Institute. This post delves into the status of healthcare reform and how to get involved with advocating for cancer patients and their loved ones at a national level. To start, let’s take a look back in time a few weeks ago to see where healthcare reform stood, and then we will explore where healthcare reform is now and how it may play out in the next few months: At the end of July, there were several major senate votes that all but ended the polarized status of the healthcare reform crusade. On July 26th, a repeal and replace bill aimed at terminating Obamacare with no replacement plan was defeated in the senate. This bill fell six votes short of being passed. After the failure of this bill, senate majority leader Mitch McConnell proposed a “skinny repeal” amendment. The “skinny repeal” would essentially preserve Obamacare but modified a few key elements, including the elimination of Obamacare’s “individual mandate,” which taxes uninsured individuals, and disposing of penalties for some businesses that do not offer coverage to their employees. Under this plan, 16 million Americans would lose their insurance, and many more would face significant increases on their premiums. On July 28th, the senate voted against the skinny repeal, which many felt would be the last effort to pursue health care reform in such drastic terms. The senate is now approaching their August recess. Though the failure of the repeal and replace bill as well as the skinny amendment is a major victory for healthcare advocates, there are still potential issues on the horizon. When the senate reconvenes in the Fall, a bipartisan hearing is planned in preparation for September 27th, the day that insurance companies and the federal government sign contracts outlining what will be sold on Obamacare exchanges. The hope is that this bipartisan hearing will drive down premiums as well as provide billions to insurance companies to subsidize individuals on an Obamacare plan. However, at this juncture, the future of healthcare reform is still murky. It is possible for the administration to take away federal subsidies, neglect to enforce the individual mandate, and cut funding for organizations that assist low income individuals with healthcare enrollment. Notably, the CHIP program, which provides coverage to children of low income individuals who are not eligible for Obamacare but also cannot obtain private insurance, is set to run out of funding in September. These funds may very well not be reinstated. Further, an analysis was conducted by the Kaiser Family Foundation that found that insurance agencies are going to be increasing premiums significantly in the next year due to the uncertain tide of healthcare reform.  The analysis also found that insurer participation in the Obamacare market will be at an all-time low. So where are we now? Perhaps cautiously optimistic. There have been major victories in recent weeks that indicate that access to affordable care is a value shared by many Americans. However, we must stay vigilant in our pursuit to maintain the availability of quality healthcare for all. To get involved with CSC’s Cancer Policy Institute, you can join our advocacy movement. Once a part of the movement, you will have the opportunity to voice your opinions, participate in research, and receive information about policy initiatives. We believe that no one should face cancer alone, and part of that endeavor involves fighting to continually ensure equal access to affordable healthcare. [1] Cancer Policy Institute Aims and Positions. (n.d.) Retrieved August 10, 2017, from https://www.cancersupportcommunity.org/cancer-policy-institute-aims-and-positions

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    • CSCP | Educational Workshops

      Top oncologists, radiologists, surgeons, and other medical specialists give presentations designed specifically for people with cancer and their loved ones Educational Workshops Roadmap to Resiliency Register Friday September 25 1:00 – 2:00 pm Join for this webinar focused on tools to help you manage distress, including finding meaning in difficult times, managing fear, and developing coping strategies for the road ahead. Dr. Arash Asher Breast and Colon Cancer : What Now? Register Tuesday September 29 6:00 – 7:30 pm Join from the for this informative presentation on what to do if you have Breast/Colon Cancer while doing chemo/radiation (diet & nutrition, & more!). Dr. Amliya Santiago, ND Integrative Natural Medical Clinic Federal Health Benefit Laws Register Tuesday October 13 3:00 – 4:00 pm Representatives from and will provide information and education on federal health benefit laws. Department of Labor Employee Benefits Security Administration (EBSA) Covered California ​ EBSA will help you understand what rights you and your family have so that you can make timely and informed decisions when you need to. Covered California will provide information on ACA, a MediCal overview, Financial Assistance, Health Coverage Options, and other health insurance related questions. Breast Health Register Tuesday October 27 4:00 – 5:00 pm Join breast cancer surgeon for an informative and empowering workshop on breast health. In the workshop, Dr. Schulz-Costello will discuss preventative medicine and recommended screening practices. City of Hope Dr. Katharine Schulz-Costello Meals That Heal - 3 Part Series Register Tuesdays November 10, November 17 & November 24 3:00 – 4:00 pm This three-session series will focus on helping you make healthy and nutritious meals! You will broaden your cooking skillset and nutrition knowledge, while also learning about how to meal plan when you experience side effects that may interfere with your eating. is a HER2 breast cancer thriver, and a senior community benefits manager at . She will infuse her practical experience with solid recommendations while creating a foundation of accessible resources and flexibility that encourages experimentation for all class participants. Nancy Clifton-Hawkins City of Hope Self-Hypnosis for Calming & Relaxing Register Tuesday November 10 4:00 – 5:00 pm Join Certified Clinical Consulting Hypnotist, , for a guided progressive relaxation, customized for individual needs. Before beginning, make sure you’re in a safe comfortable place with no distractions. Carmela Tunzi is the owner of in Los Angeles (Atwater Village). Carmela Tunzi MindFlow Hypnosis Getting Financially Fit Register Wednesday December 16 4:00 – 5:00 pm Join , CFP, , for an informative presentation on taking charge of your financial health. He will discuss the financial planning process, how to build habits to improve your financial health, and the many tools available for helping you reach your goals. Aram Schotts Gamble Jones Investment Counsel Eat to Live Well - 3 Part Series Register Wednesdays February 3 , 10, & 17 3:00 – 4:00 pm Let’s Zoom together for this three part fun and informative nutritional food workshop with , author of . Pam will be covering important food topics like what to eat, what not to eat, how to shop, what to cook and how to cook it; all focused on avoiding cancer or a recurrence. She will also cover how to eat out healthfully whether at a restaurant on getting takeout. Pam, a former chef and restaurant owner, was diagnosed in 2004 at the age of 52 with a 15% chance of survival and a 75% chance of recurrence. Her fierce determination to do all she could through her cancer journey through the present, in conjunction with traditional medical treatment, compelled her to begin researching the science of food and its relationship to cancer. Pam Braun The Ultimate Anti-Cancer Cookbook

    • CSCP | Newsletters

      "CSCP has been a blessing for me and my family. It has helped us get through one of the hardest years of our lives" -CSCP Member CSCP Newsletters Fall 2020 CSCP Newsletter Winter 2019 CSCP Newsletter Summer 2020 CSCP Newsletter Fall 2019 CSCP Newsletter

    • CSCP | Benefactors Society

      This society recognizes the exceptional generosity of our compassionate supporters who share in the urgency of our mission and have chosen to support CSCP at leadership levels An invitation to join the 2020 Benefactors Society Download Membership Form With a $20,000+ leadership gift, you will be recognized as a Benefactor in CSCP’s Benefactors Society. Because of your vision and generosity, your gift to the Benefactors Society will provide the foundation and inspiration necessary to sustain, expand and enhance our programs and services. $20,000+ Benefactor: All Benefactors receive the following benefits during their membership year: ​ Recognition as a Benefactors Society Sponsor (Benefactor) at Angel Gala and preferred event seating for one (1) table of 10 plus all sponsor benefits* Recognition as a Benefactors Society Sponsor (Benefactor) at Poker Bowl and admission for 8 Players to Poker Bowl plus all sponsor benefits* Recognition as a Benefactors Society Sponsor (Benefactor) at Ladies Night Out and preferred event seating for one table of 10 plus all sponsor benefits* Two complimentary tickets to CSCP’s Holiday Boutique and Luncheon Observation of Support Group, if desired Complimentary membership in the Guild, if desired Invitation to The Benefactors Society Dinner featuring recognition of members, a prominent speaker, and participant testimonial Personal visit with CSCP’s Executive Director and Board President Recognition and Listing: CSCP's website, Annual Report, and Donor Wall *Sponsor benefits include: advertisement on event media and CSCP website, name or logo featured on event media and CSCP website, link from CSCP website to sponsor (corporate ) website, invitation to VIP reception, and name or logo in CSCP 2017 newsletters and calendars. With a $10,000 major gift, you will be recognized as a Patron in CSCP’s Benefactors Society. $10,000 Patron: Patrons receive the following benefits during their membership year: ​ Recognition as a Benefactors Society Sponsor (Patron) at Angel Gala OR Ladies Night Out and preferred event seating for one (1) table of 10 plus all sponsor benefits* Recognition as a Benefactors Society Sponsor (Patron) at Poker Bowl and admission for 4 Players to Poker Bowl plus all sponsor benefits* Preferred event seating for five (5) guests at Angel Gala OR Ladies Night Out One complimentary ticket to CSCP’s Holiday Boutique and Luncheon Complimentary membership in the Guild, if desired Invitation to The Benefactors Society Dinner featuring recognition of members, a prominent speaker, and participant testimonial Recognition and Listing: CSCP's website, Annual Report, and Donor Wall *Sponsor benefits – see above. The power of your charitable giving at a leadership level cannot be overestimated. Quite simply, it is your giving that allows Cancer Support Community Pasadena to fulfill its mission as a much needed beacon of hope and strength for people living with cancer. We are deeply grateful for your consideration of our invitation, and your support. Thank you. Ellen and Harvey Knell * Terri and Jerry Kohl Lee and Mickey Segal *Founding Benefactors Cancer Support Community Pasadena extends its gratitude to the following Benefactors and Patrons: BENEFACTOR SOCIETY MEMBERS BENEFACTORS ($20,000+): PATRONS ($10,000 - $19,999): Bonnie and John DeWitt The Havner Family Foundation LeAnn and Michael Healy Mary and Dick Mader Ann and Mike Malone Dana and Mike Naples Julie and Scott Nesbit * Sue and Steve Silk Susie and Brad Talt

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76 East Del Mar Blvd, Suite 215 Pasadena, CA 91105

Email: info@cscpasadena.org

Phone: 626-796-1083

EIN: 95-4201985

Cancer Support Helpline: 888-793-9355

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